The Foundation seeks to raise and direct funds to high-impact JPS studies—supporting pilots and collaborating with similar organizations and alliances to explore new research and therapeutic avenues.
Specific emphasis will be given to research focused on clarifying genotype-phenotype links of mutation-negative JPS carriers. Other emphasis will be placed on any potential undiagnosed diseases that could accompany JPS or mistakenly lead to a JPS diagnosis.
The Foundation will promote data and resource sharing with other non-profits, alliances and medical centers/researchers working on JPS and related polyposis syndromes.
The Elijah Shivers JPS Foundation of Hope 