Our Goals

• Awareness & community engagement. The Foundation intends to create culturally responsive education and awareness about what JPS is, how it is diagnosed, and why early, regular screening matters.
• Fundraising for research. The Foundation seeks to raise and direct funds to high-impact JPS studies—supporting pilots and collaborating with similar organizations and alliances to explore new research and therapeutic avenues. Specific emphasis will be given to research focused on clarifying genotype-phenotype links of mutation-negative JPS carriers. Other emphasis will be placed on any potential undiagnosed diseases that could accompany JPS or mistakenly lead to a JPS diagnosis. The Foundation will promote data and resource sharing with other non-profits, alliances and medical centers/researchers working on JPS and related polyposis syndromes.
• Patient & caregiver support and advocacy. JPS management can involve frequent procedures and multidisciplinary care. The foundation will seek to explore practical help and be a strong advocating voice for JPS patients and their caregivers. The goal is to support JPS patients, caregivers and their families in focusing on the care of the JPS patient, not hurdles.